I’m part of quite a few groups on Facebook that are for people with my particular chronic pain conditions/illnesses. They have been a huge source of comfort for me to know that I’m not alone in this. And is also a good source of information to find out about medications and things that have helped others. My favourite group is one for my main problem, New Daily Persistent Headache or NDPH. It’s a small group of under 200 compared to some of the other groups I’m in which have over 1,000 members.
Yesterday on the NDPH group someone posted that it was their headaches 7 year anniversary. Now I’m nearly at 3 years and 8 months. But there are people on this group that have had NDPH for 10 years +. What’s stopping me from becoming one of them. That in 5 years, 10 years time I will still be in pain. Is that all that’s in store for me?!
There is no cure for NDPH, and very little management and treatment for it. What if all my future has in store for me is to live like this forever, that I never get better. Because I’m not sure if I can handle that.