So I had an appointment at my local hospital with a pain management consultant today. I was referred back in November but the appointment only came through for this month. I had been in two minds about canceling it cause I wasn’t sure if I could handle another person telling me there is nothing more they can do or offer me to help. So I decided I would go anyway.
But I was right the consultant said there is nothing more medically to do, other than wait for Occipital Nerve Stimulation surgery to become available again on the NHS. He said that he didn’t think opiates would help as nothing else has helped and he said even if they did initially help they would most likely stop helping after a while and then I would have ruined my chances of getting ONS surgery as I can’t have been on opiates if I want that. So waiting is my best option for ONS is my best option.
But he said a pain management program might be a right path to go down and they do one at the hospital I went to today. He said he would write me and my GP a letter stating about this and then I could discuss it with my GP and maybe get a referral to a program. So I think I’m going to do that. I’m kicking myself though as I should have asked if there was a waiting list for it or anything but I didn’t think of that question at the time. As I would need to do the program before September as after then I will hopefully be in college and won’t be able to take what could potentially be a couple of weeks out.
I’m interested to know if anyone that reads this has been on a pain management program and what it was like? So if you have I would love to know your experiences with it, if it helped, what it was like/involved?!