Pain management program.

So I had an appointment at my local hospital with a pain management consultant today. I was referred back in November but the appointment only came through for this month. I had been in two minds about canceling it cause I wasn’t sure if I could handle another person telling me there is nothing more they can do or offer me to help. So I decided I would go anyway. 

But I was right the consultant said there is nothing more medically to do, other than wait for Occipital Nerve Stimulation surgery to become available again on the NHS. He said that he didn’t think opiates would help as nothing else has helped and he said even if they did initially help they would most likely stop helping after a while and then I would have ruined my chances of getting ONS surgery as I can’t have been on opiates if I want that. So waiting is my best option for ONS is my best option.

But he said a pain management program might be a right path to go down and they do one at the hospital I went to today. He said he would write me and my GP a letter stating about this and then I could discuss it with my GP and maybe get a referral to a program. So I think I’m going to do that. I’m kicking myself though as I should have asked if there was a waiting list for it or anything but I didn’t think of that question at the time. As I would need to do the program before September as after then I will hopefully be in college and won’t be able to take what could potentially be a couple of weeks out. 

I’m interested to know if anyone that reads this has been on a pain management program and what it was like? So if you have I would love to know your experiences with it, if it helped, what it was like/involved?!

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2 thoughts on “Pain management program.

  1. Like you, I have been told there is nothing more medically they can do for my pain. I have been to pain docs but they just leave the prescribing of opiates to my PCP (GP). I have friend in the UK that have been to the pain program, if you like I can contact them and ask what their experience has been like. I am in the US so not sure if the program will be the same.

    • It really sucks being told there is nothing more to do and feeling like you have no options and will have to live like this the rest of your life.
      That would be great, if you don’t mind, and could just find out for me exactly what was involved etc.
      Thanks, and I hope you manage to have a low pain day!

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