MHAM blogging challenge – Day 4

What large thing give you hope for living with headaches and migraines? 

Pain management – and by that I don’t mean pain killers after pain killers, I am talking about natural pain management techniques. My journey with NDPH led me to try many different medications, treatments and doctors for years to try and alleviate some of my pain, unfortunately none of it made the slightest bit of impact and eventually my neurologist, a top headache specialist at the neurology hospital in London told me there was nothing more he could do for the time being, that was 2 years ago. I lost all hope when he told me that, I felt beaten helpless and completely and utterly hopeless and entered yet another stage of deep depression. I wasn’t allowed any pain killers stronger than triptans due to being on the waiting list for surgery (still on the waiting list – still not moved) so I just had to suffer because triptans were useless.
I was then turned onto natural pain management and acceptance and commitment therapy with my psychologist. This involves things like mindfulness meditation, pacing of activities, catching yourself when your thoughts turn negative, acceptance, breathing, stretching, exercise, to name a few. When I practice it all properly it gives me more relief than any form of conventional medicine ever gave me and helps me maintain a positive outlook on my life, helping me live a happy and full life despite pain.
So far since learning all this I haven’t been able to get it consistent, I dip in and out of it have periods where I feel a lot better because I am practicing all of it, and then periods where I rebel and do none of it, as sometimes it feels too much like hard work, because it is it’s not easy. However I know it is worth it to be in the good place it can get me to. My goal at the minute is to get consistent with my pain management, and I hope to get to a consistently okay/good place, I have been in the place before however depression seems to creep back in and I find myself slipping back into old depressive habits, that are not helpful and make me feel worse. Knowing that this good place can exist for me was half the battle, as before pain management I didn’t know the okay place could ever exist for me, but it does and I hope to get back there and I hope to stay there.
Pain management gives me hope – hope that everything will be okay, hope that I can live a good and full life despite my pain.

The Migraine and Headache Awareness Month Blog Challenge is organized by the American Headache and Migraine Association.

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2 thoughts on “MHAM blogging challenge – Day 4

  1. Hi Sian,
    I appreciate your blog. My husband has had NDPH for the past 9 years. He has tried many things but has not found anything that helps. In a week he’ll be entering a pain management program. This will be his 2nd time. We are hoping he’ll be able to live well in spite of the pain. Thank you for sharing your story.

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