New Daily Persistent Headache or NDPH is characterised by a 24/7 often migraine quality headache that is unremitting from the day of onset. For some people the pain can build up over 2-3 days and on the third becomes unremitting. Most NDPH patients remember the exact day of onset, many the time and what they were doing when it started. I certainly do.
In the beginning you just think it’s a really bad normal headache, so you take some ibruprofen or paracetamol, and maybe go and try to sleep it off. But you wake and it’s still there. And it’s there all day, its there when you go to sleep and again when you wake. This repeats day after day, month after month. At some point you seek medical treatment, but there isn’t much anyone can do every test comes back normal, yet you still have this raging headache all the time.
You try medication after medication, procedure after procedure, alternative treatments. None of which help much if at all, but you try anything and everything to ease the pain. NDPH is resistant to most treatments, some say it is the most resistant form of headache to have.
NDPH is like a light dimmer switch, then pain goes up and down but never fully off. I can never predict when I am going to have a bad day or a bad couple of days and have to spend it all in bed because I can’t do anything because my head hurts so much I can’t move.. My headache has a mind of it’s own, fluctuating when it wants.
In most cases it wrecks havoc on your life, causing people to have to drop out of school/college or leave their job because they can’t cope. As time goes on many people get more and more depressed due to being in pain 24/7. Many friends and family don’t understand your pain and it makes you feel alone and helpless.
I want you to imagine having the worst headache you’ve ever had. How do you feel? I bet you feel horrible right? I bet all you want to do is curl up in a ball and sleep the pain away. Now imagine if that headache never went away. Close your eyes , it’s still there, strong as ever. How would you feel. I bet you would feel pretty damn miserable right. Imagine feeling like that all the time. Imagine being in pain all the time. That’s what my life is like every minute of the day, every day.